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Health Update....Apr 2024!

Posted: Mon Apr 29, 2024 12:18 pm
by ffuries
Been AWOL on here since late last year.

Lots going on, one or more of the medications I've been on long term has caused thickening of the stomach lining and intestine. Long term I don't know the ramifications, still waiting on the Gastroenterologist to get back with me for more testing etc.

I've been tired as hell and have scaled back a lot of activities, to include my online presence.

The pass two weeks, I've had a series of Cardio appointments (Labs, test, etc). Echo showed my EF rate has dropped, whether this is fluke like before (2006) or a permanent drop remains to be seen. But the drop is not good if permanent, it's reading in the 12% to 15% range. This can lead to less blood flow to the legs leading to swelling and possibly amputation.

Cardiologist isn't saying much right now either way. We've increased one of meds to see if it helps out at all. They made a remark about not wanting to do any more heart caths on me, based on test results and health.

Basically with a low EF rate like I have, the heart has problems pumping enough blood, leading to less blood flow to the legs. Eventually it's either I get a pump to do the work, while awaiting a transplant, or take a permanent nap. No one's giving me an expiration date as of yet, but reading online, my health will take a turn over the next few years.

Am I done with the hunt for my next milsurp? I honestly don't know! I'm still trying to come to grips with everything, and trying to understand how long before I start to decline. Needless to say I have more questions than answers right now. Right now it's a waiting game to see where all this leads to.

I hoping it's a fluke again like in 2006, but I'm preparing myself for it to be the beginning of the end.

Sorry for the bluntness and weird sense of humor, it's how I deal with stress and all.

Re: Health Update....Apr 2024!

Posted: Mon Apr 29, 2024 4:18 pm
by ffuries
With the underlying damage to my heart, and EF rate being as low as it is, there is a 51% mortality rate. In 2006 I was given 10 years, meaning in 10 years I'd either be dead, have a pump assisting my heart function awaiting a transplant, or have had a transplant. I obviously wasn't very good with the math, but we may in that situation now.

I'm considered to be in the severe Chronic Health Failure category. I'm also limited to 54 ounces of fluid a day, to help prevent fluid build up.

So it's a waiting game right now, to see if there will be any improvement, along with more tests, and possibly medicine changes or if I need to start getting my personal affairs in order.

Tough pill to swallow, and not an easy topic to discuss with your family and friends. You try not to dwell on it, but everytime you feel a odd thump from your heart, or start to get dizzy and can't concentrate, your mind thinks "Oh, shit is this it?".

Re: Health Update....Apr 2024!

Posted: Mon Apr 29, 2024 5:26 pm
by Junk Yard Dog
Holy shit Batman :shock: I am fucked up, most of my friends are fucked up one way or another, me with the diabetes, neuropathy, my feet are in bad shape and I am approaching losing my mobility entirely. My friend Scott who is not far from you down there has a serious kidney condition, another friend beat himself up so badly so many times that he's loaded with bone and nerve issues and can't fully use his arms. One thing we all agree to, compared to you we have no fucking problems at all, none. We play the cards we are delt, not the ones we wish we got. one day at a time, what the fuck else can we do? Keep us in the loop if you can, some of us were wondering what happened to you.

Re: Health Update....Apr 2024!

Posted: Mon Apr 29, 2024 5:37 pm
by millman
Glad you could update us. We were worried.

Re: Health Update....Apr 2024!

Posted: Mon Apr 29, 2024 5:39 pm
by ffuries
Junk Yard Dog wrote: ↑Mon Apr 29, 2024 5:26 pm Holy shit Batman :shock: I am fucked up, most of my friends are fucked up one way or another, me with the diabetes, neuropathy, my feet are in bad shape and I am approaching losing my mobility entirely. My friend Scott who is not far from you down there has a serious kidney condition, another friend beat himself up so badly so many times that he's loaded with bone and nerve issues and can't fully use his arms. One thing we all agree to, compared to you we have no fucking problems at all, none. We play the cards we are delt, not the ones we wish we got. one day at a time, what the fuck else can we do? Keep us in the loop if you can, some of us were wondering what happened to you.
With the way I've been feeling for the last few months, I knew something was up, and I think in the back of mind I knew things were getting worse. I didn't want to admit it, but then all the tests showed it was progressing.

I mean we are terminal from the day we take our first breath. Just a big kick to the gut when you find out your number might be up. Granted nothing is in stone, and I could hang on for another couple years with no issues, or I could take that everlasting nap next week.

Just took me awhile to come to some kind of terms within myself, before I started airing it in public. With the dose increase on my one med, we'll see how it goes and how I feel. Not ready to give up yet, but what I want and what my body does might not be in agreement.

Re: Health Update....Apr 2024!

Posted: Tue Apr 30, 2024 7:02 am
by SA1911a1
It is damn good to hear from you. I am pulling for you.

Re: Health Update....Apr 2024!

Posted: Tue Apr 30, 2024 7:20 am
by ffuries
Last night was a rough night. Had an erratic heartbeat off and on, and my blood pressure kept spiking. Which was weird as we doubled my blood pressure medication. I was getting a 144/116 with a 102 pulse reading, and took awhile for it level off, and for me to go to sleep.

We'll see how it goes today, if it happens again we'll seek medical intervention.